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Danielle K. Reyes I am the 2nd Generation Agent Orange Victims Dioxin Survivor 12/14/2011

January 09, 2012

 

Danielle K. Reyes I am the 2nd Generation Agent Orange Victims Dioxin Survivor 12/14/2011

 
DANIELLE K. REYES
I AM THE 2ND GENERATION
AGENT ORANGE VICTIM
DIOXIN SURVIVOR

 

This is a pretty accurate account of what happened to my daughter, Danielle K. Reyes on the evening of 12/14/2011.  I was visiting at her home when her abdomen swelled up.  She was in pain and a great deal of discomfort.  I convinced her to go to the ER at Eastern Maine Medical Center in Bangor, Maine.

 

Danielle and her father, Bud.  Bud, my husband of 27 years passed away in 2005 due to exposure to Agent Orange/Dioxin and his service in Vietnam (Hep C, and PTSD).

Kelly L. Derricks, Dir. of Legislation & Government Affairs for Agent Orange Legacy began posting about our trip to the ER and you can view those posts below.  Ultimately, the ER sent us away because they determined, that although the CT scan showed that her intestines were distended, Danielle's condition was not life threatening.

So I took my daughter home still uncomfortably swollen, and in pain with no treatment and, once again, no answers.  This is what I wrote on my wall the very next day on FB:

Eastern Maine Medical Center discharged my daughter, Danielle last night after they determined that her distended intestines weren't life threatening. I called that same hospital tonight and spoke to someone in the ER. They are calling my daughter I hope they do something. I heard it is the fault of Governor LePage that our ER's in this state are not treating medical emergencies that aren't life threatening. So if I have a broken bone and it's not life threatening they are not going to treat me and send me home? HUH? Since when?

What has happened since?  There is a referral for my daughter to see a gastroenterologist in the works.  The only reason we knew to get a referral was because I questioned the doctor.  I wonder if we would have learned anything if I had not bothered to ask questions?

To date we are working on a theory of our own which I found while researching "distended intestines".  This is what I found:

http://en.wikipedia.org/wiki/Fructose_malabsorption
 
The only reason I am interested in this is because my daughter was eating an apple when her abdomen became distended. 

 

  
If you read this you will notice that the 2nd food listed on the chart of foods to avoid if you have an intolerance to fructose is APPLES:

 
 

Foods with high fructose content

According to the USDA database,[14] foods with more fructose than glucose include:
 
 
Food Fructose (grams / 100 grams) Glucose (grams / 100 grams)
Sucrose
(for reference)
50 50
Apples 5.9 2.4
Pears 6.2 2.8
Fruit juice
e.g. Apples,
Pears
5 to 7 2 to 3
Watermelon 3.4 1.6
Raisins 29.8 27.8
Honey 40.9 35.7
High fructose
corn syrup
42 to 55 45 to 58
 

To sum this all up I am sad to say that often we are left to figure out what is happening on our own.  I know that the 2nd Generation is not the only group to have these kinds of problems.  I know others also must figure their health issues our for themselves.  What I do know is that most people don't have these kinds of health issues at the age of 30 either.  I also know that if reducing fructose and all it's many versions from her diet gives her relief it isn't really the problem.  The problem is probably caused by some unknown autoimmune disease which will be difficult to diagnose and treat.

 

Danielle K. Reyes

How can we treat it if we don't know what it is and the American Autoimmune Disease Related Diseases Association, Inc. states the following: 

This lack of knowledge and collaborative effort results in untold suffering for persons with autoimmune diseases due to misdiagnosis and delayed diagnosis which may result in damage to vital organs.The need to bring a national focus to autoimmunity as the common factor in all autoimmune diseases is vital in order to bring a collaborative effort to research, funding, early detection, and eventually, prevention and cure for all autoimmune diseases.

If misdiagnosis and delayed diagnosis may result in damage to vital organs what of the many autoimmune diseases that have no treatment, what then?

Respectfully submitted on behalf of my daughter, Danielle K. Reyes, 2nd Generation Agent Orange Victim, Dioxin Survivor.

Sharon L. Perry, Founder
Agent Orange Legacy
Children of Vietnam Veterans
We R the 2nd Generation

NOTE:
[Just recently, prior to the night of 12/14/2011, she had been experiencing pain in her kidneys, bladder and that whole general area.  My daughter went to her doctor for this issue and they found blood in her urine.  At that time she had an ultra sound of her kidneys which appeared normal.  Most of her blood tests were normal as well.  The doctor's assessment was that my daughter was passing some sort of gravel which might have due to a kidney stone which we believe she passed this past August.]

 

  • POSTED ON AGENT ORANGE LEGACY FB PAGE 12/15/2011

 

This is a photo of my late husband, Bud who died in 2005 due to exposure to Agent Orange – Dioxin and his service in Vietnam (HEP C, and PTSD) and our two children; Danielle and Lisbeth. 

I just wanted to update everyone after our visit to the ER last night. Unfortunately all we learned is that my daughter's intestines are distended. That is what the CT scan showed. We also were told that she should be referred to see a gastroenterologist. A referral is in the works now. 

The doctor at the ER said that they ruled out any life threatening situations and that was it. DISCHARGED. I never heard of such a thing. What of medical emergencies that aren't life threatening; broken bones, and the like? What are we supposed to do? 

 

Danielle is still feeling horrible today, her abdomen is still distended and she is still in pain. I have watched my daughter go through this sort of thing all of her life. It is heart breaking. I wish I could carry her burden for her but I can not. So I continue my work via AO Legacy and hope that we can change things for the children of Vietnam veterans exposed to Agent Orange – Dioxin who are sick and suffering. 

We thank everyone for their well wishes, prayers, support and love. We appreciate it so very much!! Sharon L. Perry, Founder

 
  • POSTED TO WE R THE 2ND GENERATION FB PAGE 12/14/2011
Hi 2 everyone.. I am home not feeling very good at all. I just wanted to take the time to thank all of you that have left me well wishes. D. Reyes
  
  • POSTED ON WE R THE 2ND GENERATION FB PAGE 12/14/2011
THE HOSPITAL HAS SENT D. HOME WITH DISTENDED INTESTINES. I AM LOOKING UP A G.I. DOC. FOR HER OUT OF A PRIVATE HOSPITAL IN MAINE. KELLY
 
 
  • POSTED ON AGENT ORANGE LEGACY FB PAGE 12/14/2011
THE HOSPITAL HAS SENT D. HOME WITH DISTENDED INTESTINES. I AM LOOKING UP A G.I. DOC. FOR HER OUT OF A PRIVATE HOSPITAL IN MAINE. KELLY
 
  • POSTED ON AGENT ORANGE LEGACY BLOG 12/14/2011
D HOSPITAL UPDATE

agentorangelegacy.blogspot.com

  • POSTED ON AGENT ORANGE LEGACY FB PAGE 12/14/2011
9:30 P.M. D. is being taken for CT SCAN Now.
 
  • POSTED ON AGENT ORANGE LEGACY BLOG 12/14/2011
UPDATE

agentorangelegacy.blogspot.com

  • POSTED ON AGENT ORANGE LEGACY FB PAGE 12/14/2011
STOP – It is 6:48 eastern time. My partners and founders of AOLEGACY Danielle and Sharon are on their way to the hospital. Danielle is still having problems after being sick for several weeks, Sharon (her Mom) is with her. These women are closer to me then my own family, they are my family. All further posts tonight on any of our pages and websites will be updates on how D. is doing. Please keep in mind, that without D. and Sharon, there would be no Agent Orange Legacy. All my love goes out to them right now as I sit and wait by the phone for updates. Thank you all for the support that I KNOW you will all show. 

 

Kelly L. Derricks

Legacy of Our Veterans' Military Exposures
  1. Pingback: Gastroparesis A New Diagnosis | Agent Orange Legacy

  2. robert lower Reply

    Why are they not helping us??????????
    SGGP English Edition- Vietnamese leaders welcome US Senators
    http://www.saigon-gpdaily.com.vn
    the the girl that girl why are they not help us
    she is the dather a vietnam vet who died from agent orange when she was 7,she has the dam agent orange and i is died from it now,her and the other have the agent orange,they both leaders of agentorangelenge ,we not a weak gronp,i not with just one group and more,i have every veitnam vets group these is and there all hate mccain
    jannia i know you think have everything you want now,you have mccain,and everything is going your way,but when stop talking me you blow it i found all these dif groups and i have 4 gulf war vet i with they all ,all these veitnam want is what do they not the dam cover up they been getting for last 40 years,i think what mccain is trying is very good,but the nobody has ever try to help the vietnam vets,jannies i the only vietnam vet that god make should not get the agent orange,all vet are going died out all not,
    jannies i trying stop this fight before it happen right now only one gronp know above this now ,i would like keep it that way,the only way to stop the 2 girls from going ather mccain and stop him from getting back in oiccer this year,they both know engh above the va,the rep party and mccain to stop him all toghter,we was support meet feb 4,i can not stop 2,they no way off talking to they no messages or wall,they want to make should nobody can stop they,i have way of talking to they,so i asking you if you want everything mccain said can do to happen meet as fast as you get mccain or just you to meeet with us,i ready need mccain there so we ask him just what the hell is he doing,you have never asker anything anymore,you can read this and gave a asker of what want to do,NO ASKER I GAVE TO ALL THE VET,VIETNAM AND GULF
    i  know you want help you poeple in vietnam but we need to help both group,and i think i the dam key to vietnam and all the vets here
    i copy this and gaving to the 2 girls
    kelly and danielle this is the safe way to talk to you 2 and tell just what going on she just one to gave a asker nothing they gave this to vets group i know so just tight on it for one day to see if this work and i get meting with you 2 and jannies and maccian
    yeaster i said want meet you 2 and try take pain aay,well we will have metting,i know now i the dam key to this whole thing

  3. robert lower Reply

    is there anybody here out of the 3 of you girls that are not sick,why the hell can they not find what is happening to danilla,i do not think have agent or orange or my body is ready good at fight it,i have warts as kid,i thing was one of early signs,they went away ather a month,i stop eatinh apples and ice cream,no more pain in my chest,,now i eat swedish fish,i been happy when finny get the agent orange test,if i have it why the hell is it not doing anything to me,retite at age 55,have never been to a docter in 8 years,when i was working i went all the time to make should i was heath,i been retire for 8 years i not take one dam pill yet,ok i the only !% of the poeple that are in my shape,when run before i was 150,maybe 170 now,the shorts i have from dather back 2000 are now 2 big for me now

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