I AM THE 2ND GENERATION
AGENT ORANGE VICTIM
This is a pretty accurate account of what happened to my daughter, Danielle K. Reyes on the evening of 12/14/2011. I was visiting at her home when her abdomen swelled up. She was in pain and a great deal of discomfort. I convinced her to go to the ER at Eastern Maine Medical Center in Bangor, Maine.
Danielle and her father, Bud. Bud, my husband of 27 years passed away in 2005 due to exposure to Agent Orange/Dioxin and his service in Vietnam (Hep C, and PTSD).
Kelly L. Derricks, Dir. of Legislation & Government Affairs for Agent Orange Legacy began posting about our trip to the ER and you can view those posts below. Ultimately, the ER sent us away because they determined, that although the CT scan showed that her intestines were distended, Danielle's condition was not life threatening.
So I took my daughter home still uncomfortably swollen, and in pain with no treatment and, once again, no answers. This is what I wrote on my wall the very next day on FB:
What has happened since? There is a referral for my daughter to see a gastroenterologist in the works. The only reason we knew to get a referral was because I questioned the doctor. I wonder if we would have learned anything if I had not bothered to ask questions?
To date we are working on a theory of our own which I found while researching "distended intestines". This is what I found:
If you read this you will notice that the 2nd food listed on the chart of foods to avoid if you have an intolerance to fructose is APPLES:
Foods with high fructose content
|Food||Fructose (grams / 100 grams)||Glucose (grams / 100 grams)|
|5 to 7||2 to 3|
|42 to 55||45 to 58|
To sum this all up I am sad to say that often we are left to figure out what is happening on our own. I know that the 2nd Generation is not the only group to have these kinds of problems. I know others also must figure their health issues our for themselves. What I do know is that most people don't have these kinds of health issues at the age of 30 either. I also know that if reducing fructose and all it's many versions from her diet gives her relief it isn't really the problem. The problem is probably caused by some unknown autoimmune disease which will be difficult to diagnose and treat.
|Danielle K. Reyes|
How can we treat it if we don't know what it is and the American Autoimmune Disease Related Diseases Association, Inc. states the following:
This lack of knowledge and collaborative effort results in untold suffering for persons with autoimmune diseases due to misdiagnosis and delayed diagnosis which may result in damage to vital organs.The need to bring a national focus to autoimmunity as the common factor in all autoimmune diseases is vital in order to bring a collaborative effort to research, funding, early detection, and eventually, prevention and cure for all autoimmune diseases.
If misdiagnosis and delayed diagnosis may result in damage to vital organs what of the many autoimmune diseases that have no treatment, what then?
Respectfully submitted on behalf of my daughter, Danielle K. Reyes, 2nd Generation Agent Orange Victim, Dioxin Survivor.
Sharon L. Perry, Founder
Agent Orange Legacy
Children of Vietnam Veterans
We R the 2nd Generation
[Just recently, prior to the night of 12/14/2011, she had been experiencing pain in her kidneys, bladder and that whole general area. My daughter went to her doctor for this issue and they found blood in her urine. At that time she had an ultra sound of her kidneys which appeared normal. Most of her blood tests were normal as well. The doctor's assessment was that my daughter was passing some sort of gravel which might have due to a kidney stone which we believe she passed this past August.]
This is a photo of my late husband, Bud who died in 2005 due to exposure to Agent Orange – Dioxin and his service in Vietnam (HEP C, and PTSD) and our two children; Danielle and Lisbeth.
I just wanted to update everyone after our visit to the ER last night. Unfortunately all we learned is that my daughter's intestines are distended. That is what the CT scan showed. We also were told that she should be referred to see a gastroenterologist. A referral is in the works now.
POSTED TO WE R THE 2ND GENERATION FB PAGE 12/14/2011
POSTED ON WE R THE 2ND GENERATION FB PAGE 12/14/2011
THE HOSPITAL HAS SENT D. HOME WITH DISTENDED INTESTINES. I AM LOOKING UP A G.I. DOC. FOR HER OUT OF A PRIVATE HOSPITAL IN MAINE. KELLY