Protecting our veterans' children
Legacy of Our Veterans' Military Exposures
Justice - social, environmental, human
Protecting our veterans' children™

Disabled Children of Vietnam Veterans Suffer High Incidence of Autoimmune and Rare Diseases

https://www.facebook.com/groups/aolivingwithagentorange/

Our research indicates that there is a high incidence of autoimmune and rare disease among the children of Vietnam veterans.

AARDA states that there is ‘untold suffering’ of people due to misdiagnosis and delayed diagnosis which can lead to possible vital organ failure.

Rare diseases can also be autoimmune diseases.  We recommend visiting the The Rare Disease Database, NORD and research your symptoms.

Rare diseases are hard to diagnosis because so few people have them.  Autoimmune diseases can not be detected by routine blood tests.

A blood test, if one is available, has to be specifically for the autoimmune disease in question.

Many of the children of Vietnam veterans and their families end up doing their own research because our doctors often do not have the answers we need to solve our health problems.

Here is a link to our List of Reported Illnesses from the health information we have gathered from our members.

This will help you to narrow your search.

 

NOTICE:  This information is provided for informational purposes only and is meant to be used to supplement any information you provide to your doctor.

Legacy of Our Veterans' Military Exposures
  1. Lesley Reply

    My father served in the Navy during the Vietnam War. Ever since I was a baby I have had odd allergic reactions to things. The very first was a reaction was (what I am told was silver nitrate but could be mistaken) when I was born they cleaned my eyes and they swelled shut. My baby pics weren’t taken until 5 days later. I had such odd reactions to normal vaccinations that my mother refused to take me to get the second MMR vaccine. I have been diagnosed and hospitalized many times for depression, anxiety, PTSD, and Borderline Personality Disorder. I have also attempted suicide 3 times. I have had Pityriasis Lichenoids Chronica. I had it for 2 years when I was in my early 20’s. It took a dermatologist about 6 months before it was finally biopsied and it was found to be PLC. I have also had recurring ovarian cysts that needed removal. I saw a Gynecolgical Specialist at UNC that added Pamelor while I was already taking Lexipro and I ended up with Serotinin Syndrome. Since they both aren’t SSRI’s this reaction shouldn’t have happened but it did none the less. I still feel as if I have lasting effects from the Serotonin Syndrome but I’ve been told thats not possible. I have tachycardia (my resting heart rate is somewhere between 100-120), If I don’t take klonopin symptoms of SS come back even though its not supposed to, my reflexes are still extremely fast and I have muscle twitches while lying still. I still have tho= After that at age 27 I had a total hysterectomy at age 27. I have fevers with no known cause that have gone as high as 105.8. Before I get these fevers that they can only diagnose as viral, my hands get cold, numb, and tingly. That is my warning sign to get into bed and turn on heating pads that I use to help keep me warm. I shiver so badly at times I think I’m going to break my teeth. I was diagnosed about 4 years ago with Interstitial Cystitis of my bladder. A while after my diagnosis I began having blood in my urine. I saw a specialist in this area who said I had the worst case he has ever seen in some time of what is now Hemorrhagic Interstitial Cystitis. It is extremely painful and I am on long acting pain management drugs to try to control the pain. That brings me up to date besides a torn ACL that has to be reconstructed, but I have no idea how it happened. It just started to feel weird and swell up. I also have a huge list of drug allergies and I cannot eat any raw fruit or vegetables as I my throat, mouth, and lips will get tingly and itchy and a little swollen. If they have been processed (i.e. canned fruit, boiled vegetables) I have no problem. All of these things have kept me from having anything close to a normal life. I have an appeal for disability coming up soon. My father has not yet gone to see if he is eligible for Agent Orange benefits. He is going to very soon. Do I have anything that may be caused by being a dependent of a veteran that was exposed to Agent Orange?

  2. Melanie Portello Reply

    Hi my name is Melanie, I am 32yrs old. my father was a Vietnam veteran who was exposed to agent orange. He was diagnosed in July 2003 with multiple myeloma (which the VA recognised was due to exposure to agent orange) and passes away in December 2003. In February 2008 I was diagnosed with multiple sclerosis. I have always wondered if there was a connection, thank you for sharing this information.

Leave a Reply

*

captcha *